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The members of PatientsLikeMe share their experiences
anecdotally as well as quantify them - breaking down their
symptoms and treatments into hard data. They note what
hurts, where and for how long. They list drugs, dosages and
how well they help. All this gets compiled, aggregated and
crunched into tidy bar graphs and progress curves by the
software behind the site. Members of PatientsLikeMe are
creating a rich database of disease treatment and patient
experience.
The company, financed by private investors, eschews
advertising; the business model seeks to exploit the value
of the databank itself. The company expects that the data
will generate insights with considerable scientific and
economic value |